First of all, this first picture might be my favorite picture of Miss Wesleigh yet! I absolutely love it!
Many of you have been asking about the results of Wesleigh's MRI. We went to the neurologist today to get the results. I didn't leave the office with the report I was hoping for. I unrealistically expected her doctor to tell me she was perfect and to have a good life. Instead, he told me that she has a tethered spinal cord and that we will need to keep an eye on her until she stops growing. Actually, what the dr. said was that every child with spina bifida has a tethered cord. How did I not know this? With all the research I did before going to China, no one ever told me that. In a way, I'm glad because it is possible that would have deterred us from accepting her referral. For those of you who might not know, Wesleigh's referral said she had a repaired meningocele. That is a very mild form of Spina Bifida which has the least amount of side effects. Today, I also found out that Wesleigh has a more serious form of SB. She has myelomengocele. This means that there was more nerve involvement than we previously thought. Bottom line, she's the same cutie bug today as she was yesterday and a label doesn't change that. I would be lying, however, if I said it didn't upset me.
So...what does this all mean? Having a tethered cord means that her spinal cord is not "floating" like it should be. It is attached to her spine and as she grows, her cord will be stretched. This could cause her to start losing some function of her legs and bowel/bladder control. There is a surgery to detatch the cord, but it does not come without serious risks. This would be a last resort. Nobody is saying that she will need this surgery, or even have these side effects.
I am choosing to believe that she will be fine, and bottom line is, she will be. There are many families facing much worse diagnosis' for their children. This is not life threatening. I know that God has a mighty plan for her life. I will not lose sight of that.
The good news is that I adore her doctor. He has been very kind to me. I pretty much argued with him a couple of times (very nicely). I even asked him, "Are you sure?" He is very patient and understood that I needed a little time to digest it all. I think he's pretty smitten with Miss WJ too. Can you blame him? This outfit is what she wore today so you can imagine the attention she received at the office. She was definitely a show stopper! If you have to spend lots of time with a doctor, it's nice if you really like him!
The boys start their football games this weekend, so pretty soon, I'll have something else to post beside tutu's and bows. I really should be taking pictures of all the bruises those boys have been coming home with! Good Lord!! I can hardly stand it! I just close my eyes and hope for the best!
Hope you're having a great week!